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Note -- This story first ran in the Health Tree Foundation and was written by Audrey Burton-Bethke, a content writer and editor for the HealthTree Foundation. It is published with permission by Health Tree Foundation in Farmington Utah.
Cindy Wilkerson-Capps' journey as a myeloma caregiver is one of heartbreak, hope, and, most of all, love. Her story is unique-not only has she supported one loved one through the trials of multiple myeloma, but she has also navigated this challenging path twice. Cindy's experiences highlight the incredible strength of caregivers, the importance of connection, and the beauty of life beyond a diagnosis.
Cindy's journey began with Kirk Wilkerson of Forest City, her first husband, who was diagnosed with low-risk smoldering multiple myeloma in 2015 at the age of 47. The diagnosis came after his blood work revealed abnormalities, which led to the denial of an insurance increase. Cindy was by his side when the doctor shared the news.
As a mother to four children, including 10-year-old girls, Cindy's immediate reaction was to plan for every scenario. She dove into research, mentally preparing for the challenges ahead. In 2021, as Kirk began treatment in preparation for a stem cell transplant, he contracted COVID-19. With his immune system already compromised, he tragically passed away on August 4, 2021, after a two-week hospitalization.
At the same time Kirk was diagnosed, Cindy's college friend, Kenny Capps, had also received a multiple myeloma diagnosis. Years later, after Kirk's passing, Kenny and Cindy reconnected through social media and their shared passion for supporting others living with myeloma. Kenny had founded the nonprofit Cancer Active, Inc. to inspire others to stay active despite their diagnosis. Together, they hosted an event in Kirk's memory. Over time, their friendship deepened into love.
Just a few weeks ago, Cindy and Kenny celebrated their marriage on what Cindy describes as "the most perfect day."
Having cared for two myeloma patients, Cindy offers invaluable advice for caregivers:
"There's no one correct way to care for a myeloma patient," Cindy explains. Each patient's needs evolve over time, and caregivers must learn and adapt. It's also essential for caregivers to prioritize their own well-being. "It's difficult to put your needs ahead of your loved ones, but you absolutely have to find that time for yourself."
Cindy reminds patients and caregivers to support and lean on each other. While she prefers to stay informed about her loved one's health, she recognizes that not all caregivers want the same level of involvement. "Do your best to support and take care of each other," she advises.
Cindy has encountered many compassionate doctors who see themselves as part of a team. She emphasizes the importance of caregivers being able to ask questions and participate in discussions during appointments. "Listening to the patient and caregiver empowers everyone to make the best decisions regarding care."
Cindy's story demonstrates that a myeloma diagnosis doesn't have to define a person's life-or their caregiver's.
"Many people wonder why I would 'sign up' to do this again," Cindy admits. "But I know myeloma will not define our lives. People are living really long, really great lives despite having this blood cancer."
Through her work with the nonprofit now called Cancer Active, previously Throwing Bones, Cindy helps patients and caregivers see that they can live vibrant lives filled with adventure, love, and purpose.
Cindy attributes much of her strength to her children, family, and friends, as well as her faith. Self-care has also been pivotal in her journey. While she has always been active, yoga became a lifeline. "Yoga helped me meditate, focus, and take care of my body," Cindy shares. Her practice has become a much-needed respite from the demands of caregiving.
Cindy's story is a testament to the power of love, resilience, and hope. By sharing her experiences, she hopes to inspire others to focus on what's possible rather than what's been lost. Whether it's through her nonprofit work or her personal journey, Cindy reminds us all that life after a myeloma diagnosis can be filled with beauty, joy, and meaningful connections.
Cindy & Kirk's four children are Harrison, living in St Pete, Florida; Zeke is in Boston; Lillie Mei is a senior at REaCH-going to NCSU in fall. Jia is a senior at East going to WCU in fall. The family will participate in the annual endurance run Sunday, August 31 and the golf tournament is Friday, Sept. 26, raising money for Cancer Active previously Throwing Bones. The website is becanceractive.org
About HealthTree Foundation: HealthTree Foundation is a global nonprofit organization dedicated to improving outcomes and finding cures for blood cancers through cutting-edge technology, patient education, and research collaboration. The foundation's HealthTree Cure Hub Registry provides a powerful patient data portal where over 10,000 patients contribute real-world data, enabling researchers to drive lifesaving discoveries. By uniting patients and researchers, HealthTree is revolutionizing cancer care and accelerating cures. For more information, visit healthtree.org.
